I’m a freelance writer who is committed to sharing information and support with the rare disease community. My blog, NotSoRare, is dedicated to the memory of my dear friend Savannah Bagby and her experience with Alper’s Syndrome.

My friends, Willie and Rolland Bagby, are the founders of Savannah’s Hope, a nonprofit organization dedicated to serving the families of children with rare diseases.

I live in Moses Lake, WA with my husband and two cats.

jeff and kaitlin together


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